The BPSU aims to:
This system lessens the burden on reporting doctors of requests from numerous different sources for reporting cases of uncommon disorders. Supplementary activities of the Unit include providing advice and assistance where appropriate to research workers on the design of their studies, involvement in international surveillance of rare disease.
The BPSU has not, however, undertaken to provide a continuing national registry of rare diseases unlinked to specific surveillance projects.
The BPSU undertook an internal evaluation on 2008. A summery of the evaluation findings can now be downloaded
The Full report can also be downloaded (500kb)
|© 2008 BPSU
Last updated March 2006