Useful links

• Academy of Medical Royal Colleges
• Action for Sick Children
• Adrenoleukodystrophy support group
• Androgen Insensitivity Support Group
• Archives of Disease in Children

• British Association of Community Child Health
• BBC Health page
• British Medical Journal
• British Association of Perinatal Medicine
• British Paediatric Neurology Association

• Centre for Disease Control & Prevention (USA)
• Central Office for Research Ethics Committees
• Children First for Health (GOSH)
• Confidential Enquiry into Maternal and Child Health (CEMACH)
• Contact a Family

• European Organisation for Rare Disease (EU)
• Group B strep support group
• Health Protection Agency
• Health Protection Scotland
• Health Protection Surveillance Centre

• Institute of Child Health (London)
• International Network for Paediatric Surveillance Units (INoPSU)
• National Organization for Rare Disease (USA)
• NHS Direct
• OMNI: Organising Medical Networked Information

• National Disease Surveillance Centre Ireland
• NSHPC study website
• Orphanet
• Public Health Observatories
• PUBMed
• Royal College of Paediatrics and Child Health
• Royal College of Physicians (Ireland)
• The Shooting Star Children's Hospice
• The Lancet