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Progressive Intellectual and Neurologival Deterioration
Support Group
- Creutzfeldt-Jakob Disease Support Network: Birchwood, Heath Top, Ashley Heath, Market Drayton, TF9 4QR.
- Batten Disease Family Association: c/o Heather House, Heather Drive, Tadley, Hampshire, RG26 4QR. Tel:0791 4060742
- The Society for Mucopolysaccharide Diseases: MPS House, Repton Place, White Lion Road, Amersham, Bucks, HP7 9LP.
- Climb: (formerly the Research Trust for Metabolic Diseases in Children (RTMDC.), The Quadrangle, Crewe Hall, Weston Road, Crewe, CW2 6UR.
- ALD Family Support Trust: 30-32 Morley House, 320 Regent Street, London, W1R 5AB.
- Niemann Pick Disease Group: Kingslaw House, East Brae, East Wemyss, Fife KY1 4RS, Scotland.
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