Scleroderma

• This project commenced in July 2005 for 13 months
• It was considered necessary as at present there are no data on the occurrence of childhood scleroderma which might inform the level and distribution of expert provision required to manage affected children
• The primary aim of this study is to ascertain the incidence of childhood systemic sclerosis and childhood linear scleroderma in the UK. In addition, a number of other questions will be addressed in relation to the occurrence of these disorders
• By answering these questions, the study will provide data that should be of value in defining the need for supra-regional referral services and in designing future clinical trials.
• Funded: Raynaud's and Scleroderma Association
• Ethics: The study has approval from The South Manchester Research Ethics Committee and PIAG

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